It took years for Wisconsinite Aidan Abbott to receive a diagnosis that explained his mysterious symptoms. He was 4 or 5 when doctors diagnosed him with x-linked hypohidrotic ectodermal dysplasia, a rare birth defect that caused Aidan to be born without teeth, causing a myriad of digestive issues, reports Up North News.
The diagnosis brought some peace of mind to his family, but it was short lived. Since the day he was diagnosed The Abbotts have had to struggle with insurance companies that did not want to pay for the repair of his congenital anomaly, his mother Becky said.
Insurance has repeatedly denied covering medically necessary treatment, Aidan’s parents say, because the company labeled Aidan’s issues as “cosmetic.”
Aidan, who is now 15-year old has become not only an advocate for his health, but for the thousands of others diagnosed with congenital anomalies through advocating for a bill that would require insurance providers to cover procedures for medically necessary treatment of all congenital anomalies.
A total of 273 U.S. representatives and 37 U.S. senators have signed on as co-sponsors.
“If it’s only one voice, that’s probably not going to be heard,” Aidan said. “But as soon as you get someone to actually listen to you and help you, it just launches off from there.”
Read more about how the teen is advocating for changes to healthcare laws here.